Showing posts with label STTM. Show all posts
Showing posts with label STTM. Show all posts

January 23, 2013

My Story

In mid-January 2012, I did something that changed my life. I switched from Levothyroxine, a synthetic T4-only medication (like Synthroid), to Natural Dessicated Thyroid (NDT).

I had been on thyroxine for over 10 years, but
something wasn't right. 

I was experiencing 76 symptoms, including long-term depression and weight gain, irritability, flu-like aches, foggy-thinking, and chronic fatigue. It took me four hours to feel awake in the mornings. By 1 or 2 in the afternoons, I was sluggish and felt the need to consume caffeine and sugar to get through the afternoon. I was impatient and irritable with my family, especially my kids.  My hair was falling out; my skin had aged quickly.  In general, I had a foreboding feeling, as if a dark cloud was hanging overhead.

Three months after switching to NDT and one month after starting the Circadian T3 Method (CT3M), every single one of those 76 symptoms was significantly better than they were in January.  Eight months later, my list of symptoms was down to 12.  (Read my post comparing those symptoms here.)

The symptoms I was experiencing were the direct result of being on T4-only medication - a medication which is widely prescribed for large body of people - and doctors who are trained to use the TSH lab test to assess thyroid health.

T4-Only Thyroid Meds Don't Work.  

If my story resonates with you, if you experience any of the symptoms listed here, or if you are on a synthetic T-4 only medication, read the Stop the Thyroid Madness website.

There are thousands of patients reporting that natural dessicated thyroid has given them better quality of life than Synthroid.

Further background:

My mom's pregnancy with me was a high-risk complete placenta previa, involving three massive hemorrhages, the last of which resulted in an emergency cesarean and my birth at 32 weeks gestation.  I spent time in the NICU.  So cortisol issues were naturally present for me even before my birth. 

Then at age 6, I was diagnosed with type I diabetes, an autoimmune disease.  I did shots for ten years and I have had an insulin pump since 2000.  We suspect that it was around this time that I developed Hashimoto's Thyroiditis as well, but I did not find out I had that until I was tested for those antibodies at age 29.

Heavy, painful periods with low back pain have been my "norm" since I was 12. 

In hindsight, I can see signs of adrenal dysfunction going back to my premature birth at 32 weeks gestation.  But it was during my senior year of high school, when I was incredibly busy and stressed, that I began to show serious signs of hypothyroidism and adrenal fatigue.  

My freshman year of college was no easier.  I had only had my insulin pump for about six months before I left home, so I didn't have a comfortable grasp of how to manage my new lifestyle.  Still, I can say with confidence that I would not have been able to hack college life without my pump! 

I can't help but add that the cafeteria food at my college was downright treacherous.  Loads of white flour and sugar; extremely limited vegetables and fruits; vegetable oil on or in everything!

I finished my freshman year of college exhausted.  After a month of summer break, I had not recuperated, despite good food and lots of sleep.  I was falling asleep mid-morning. 

I requested to be tested for mono and was full of disbelief when the results came back negative. Then, with the TSH lab test,
my endocrinologist diagnosed me with hypothyroidism and she prescribed T4-only thyroid medication Levoxyl.

Shortly before summer break was over, I decided not to go back to the college I had attended, but rather to stay at home and attend a local university.  But a few weeks into school, I had a nervous breakdown.  I could not handle any stress whatsoever.  Deciding what to wear and eat - even the thought of organizing a to-do list - sent me into a tailspin.
 
My parents pulled me out of school and I took the rest of the semester off, recuperated and spent time with my family.    

It was at this time that my endocrinologist prescribed me Prozac for my depression and anxiety. I stayed on Prozac for ten years.  At no time did Prozac help me; it merely dulled my senses, lowering my highs and heightening my lows. 


In January I returned to the college where I had spent my freshman year.  I rapidly gained weight, despite being off the college's meal plan and cooking my own food.  Despite my efforts, no amount of dieting and exercise led to weight lose. 

This was when I began to experience facial swelling and tightness in my neck and throat.  I thought I had a peanut allergy!  


By my junior year of college, I had gained over 50 pounds.  For the first time in my life, I experienced suicidal ideation.   

Reproductive Issues:  

During college, I began to learn the Creighton Model NaproTechnology, formulated by Dr. Thomas Hilgers of the Pope Paul VI Institute, for my reproductive issues.

During the summer of 2004 that Dr. Hilgers informed me of his assessment that I had endometriosis and Poly-Cystic Ovarian Disease, abbreviated PCOD or PCOS.

In December 2004, I finished my college degree then immediately traveled to Omaha, NE where Dr. Hilgers and his associate performed an ultrasound, laparoscopy, luna procedure, and lasered my endometriosis.  PCOS and endometriosis were confirmed.

(A luna procedure involves the severing of a ligament that runs down the back of the uterine wall.  Part of this severing is permanent, while another part regrows.  I was told that the procedure was formerly used by surgeons in the 1980's, but fell out of practice.  It has since been improved by Dr. Hilgers and his staff.)     

More Surgery, Starting a Family, and more Bad Advice from Endos:

In July 2005, I had carpal tunnel surgery on my right wrist.

In 2006, I got married and in May 2006 conceived our first child, a girl. She was born in 2007.  Her birth was a traumatic one in  many ways.  She was born six weeks prematurely by cesarean and spent two weeks in the NICU.

For some reason, in April 2007 my endocrinologist told me to stop taking my Levothyroxine and I stupidly listened. 

In late June 2007, we moved half-way across the country to live close to family.  We lived with my parents for a short time.  My husband finally got a job.  That was stressful!

At this time, I weighed about 205 lbs.

In October 2007 (the soonest I could get an appointment with an endocrinologist), my TSH was 36.  I felt horrible!  My doctor put me on Levothyroxine.

In September 2008, I hit a low with my depression.  My cycles were horribly long - sometimes 190 days.  

In December 2008, I went off Prozac.  It wasn't helping and I was mad.  I successfully stayed off Prozac with the help of increasing my levels of Vitamin D3 to 10,000 IU.  I would later increase this to 20,000 IU.
  
In January 2009, I had a Spectracell Lab Test done, through my new doctor's office.  I started taking lot of vitamins and supplements based on my results.  I was also walking more and making nutritional changes like incorporating raw milk into my diet and cutting out hydrogenated oils. 

In April 2009, I conceived our second daughter.  This pregnancy was a very difficult one, full of stress, anxiety and trepidation.  I now realize that in addition to a poorly treated thyroid, I had extreme adrenal fatigue and low progesterone levels, although I had no signs of possible miscarriage. 

One tell-tale sign of my adrenal fatigue was that every evening, I had extremely sensitive skin, bodily aches, and fatigue.  Afternoons were difficult as well.  I was very short-tempered and irritable.  I didn't know why; I mentioned these things to my doctors, but they just sort of shrugged and looked thoughtful.  So, I chalked it up to pregnancy.   

Shortly before our daughter's birth in January 2012, I had several sinus infections which I was not able to successfully treat with natural methods, so I went on antibiotics.  I was also on antibiotics during labor for being GBS+ (Group B Strep Positive). 

For a number of reasons I will not go into here, our daughter was born by cesarean and weighed a whopping 10 pounds 4 ounces!

A few weeks after surgery, my incision developed an infection and I had to go on a very strong antibiotic.  

Post-Partum Depression

When I was about six weeks post-partum, my Creighton Model Practitioner helped me to realize that I was suffering from post-partum depression as the result of extremely low progesterone. 

It was a very dark time in my life.  Due to the stress my body was under, my milk supply dropped.  I was heartbroken, but determined to put every effort I could into regaining my supply, which I did, so that I could nurse my daughter.      


Thankfully, the PPD was helped immensely by natural, bio-identical progesterone through Dr. Hilgers.  Please, read this and this.  Looking back at the labs (TSH, FT4) my doctor was running, it is clear that my thyroid hormones dropped at this time.  


At this time, I weighed about 215 lbs. 

Cyclical Progesterone Treatment, a New Baby, Miscarriage


In May 2011, I began working with Dr. Hilgers at Pope Paul VI Institute on cyclical bio-identical progesterone treatment, as well as Low-Dose Naltrexone (LDN), for my infertility issues.  Our primary goal was to regain reproductive health for the overall health of my body.  However, we weren't opposed to having another baby. 

In July 2011, we conceived our third child.

But, at the end of August 2011, my progesterone plummeted despite on bio-identical progesterone and having my levels checked weekly.  There was a mix-up three times in a row at the lab where my blood was drawn, and Dr. Hilgers never received the blood to run my labs at his National Hormone Lab. 

In September 2011, our baby died at 8 weeks and I passed him or her at 11 weeks. 

It is my belief that my miscarriage was the result of my thyroid and adrenal dysfunction, as well as my low progesterone which is related to those.  I believe that my adrenals were stealing progesterone to make more cortisol - similar to what Dr. Rind writes about here.

October/November 2011, gained 15 pounds, totaling 234 pounds.  With each pregnancy, I lost my own weight during pregnancy but gained significant weight post-partum.  I have wondered if this was thyroid related.

Escalating Health Issues

By the fall and winter 2011, I was experiencing 76 separate symptoms, including moderate-to-severe depression, flu-like aches, foggy-thinking, and chronic fatigue.  

It took me four hours to feel awake in the mornings. By 1 or 2 in the afternoons, I was sluggish and felt the need to have more caffeine and sugar to get through the afternoon.

I was impatient and irritable with my family especially my kids.  Just as it had with my daughter, my progesterone levels were very low post partum, resulting in post-partum depression. 
In general, I had a feeling that a dark cloud was hanging overhead.

Hope

In January 2012, I was at an all-time low.  A friend said, "You've got to get on dessicated thyroid."

I saw an alternative MD and the following day I started taking Natural Dessicated Thyroid Hormones (NDT).  
As I mentioned before, my symptoms dropped consistently over time and the difference was dramatic.  You can read about the changes I made here. 

August 24, 2012

If you are on Synthroid, Levoxyl, Levothyroxine or any other T4-only thyroid meds . . .

If you are on Synthroid, Levoxyl, Levothyroxine or any other T4-only thyroid meds, please look at this website: http://www.stopthethyroidmadness.com/

You are on the WRONG medication and if it isn't affecting you now, it will later.

June 24, 2012

My answer to "How did you do it?"

I've been asked, "How did you do it?" a lot lately, mostly by other thyroid patients on the Stop the Thyroid Madness Facebook support groups. 

While I wish I could give an individualized answer to each person, it's a long answer!  So I'm writing it here.

First, let me say that at the time I am writing this blog post, I feel one hundred million times better than I did five months ago.  Still, I am no where near being optimally treated.  It's a process. 

But I am well on my way with a good plan of action, and I can see the light at the end of the tunnel.  I'm sure life will throw some curve balls at me along this journey, but the difference is that I know why I was so sick and how to get better.  

Health Changes

 Practically speaking, I took the following steps to get to the place where I am now:

  1. I switched from Levothyroxine (a synthetic, T4-only medication) to Natural Dessicated Thyroid.
  2. I started using the Circadian T3 Method to heal my adrenals.  Read HERE how it's changed my life.
  3. I started taking specific vitamins and supplements for my needs. 
  4. I stopped eating gluten.
  5. I got my iron labs checked (specifically, serum iron, ferritin, TIBC and saturation) and started supplementing according to my needs (i.e. a LOT).
  6. I started T3-only medication for my Circadian Method dose.  
The number one biggest thing I did was to start supporting my thyroid with the natural dessicated thyroid medication.  I had been on Levothyroxine for 12 years.  While my TSH was perfect, it slowly made my symptoms worse and worse.  I had gained over 100 pounds.  I had chronic depression and anxiety with suicidal ideation.

Since I started on NDT, I have cataloged my symptoms systematically.  Every single one of those symptoms has improved dramatically, and many of them are gone.  And I'm not even optimally dosed yet!  Amazing.

Post-partum Depression & Bio-identical Progesterone

I first started taking progesterone when I had Post-Partum Depression (PPD) after the birth of my second child.  That was a dark, dark time in my life.  I am very thankful to the people who helped me realize that the root of PPD is nearly always due to low progesterone. 

PPD is very different from typical depression.  If you struggle with PPD or even "the baby blues," please read more on www.naprotechnology.com about the connection between PPD and low progesterone. 

Once I was through PPD, I continued taking progesterone cyclically to help maintain regular cycles.  Otherwise, I had 190-day anovulatory cycles!  Progesterone in this instance is crucial for many women to maintain healthy, regular menstruation that could otherwise cause cancer.   

Breakthrough!

After my miscarriage last September, I knew that there was deeper going on than low progesterone.  Why is my progesterone low? I kept asking. 

I had been on progesterone before and during my pregnancy.  My gut told me that there was something deeper causing my infertility issues. 
But the real break through came when I switched from synthetic T4-only medication to natural dessicated thyroid.  I'll admit that I'm holding my breath a bit, but with continued progesterone support:
  • my cycles are a normal length (even with the use of progesterone, my cycles would "stretch out" previously),
  • my periods are no longer heavy, 
  • my periods are no longer 10-14 days long, but rather 7 or less
  • I have a lot less tail-end brown bleeding, versus the days of it I used to have,
  • the quality and quantity of peak (fertile) -type cervical fluid as improved,
  • I no longer have PMDD or PMS before ovulation and menstruation,
  • and (drum roll, please) my last period was very nearly pain-free, compared with previous periods where I was taking prescription pain medication!  
I'm convinced that eliminating gluten from my diet has played a huge role in the reversal of my endometriosis pain.  Now, if I eat any of it, I have abdominal pain again. 

Roadblocks

About two months after I started NDT, I started using the Circadian T3 Method with my NDT.  But I found that I couldn't multi-dose anymore or my heart rate would spike, and I couldn't raise my dose above about 2 grains.  When I got to 2 3/4 grains, I started getting hypo symptoms along with high hear rate.   

At this point, I did two things:
  1. I got some straight-T3 (Cynomel).
  2. I had my iron checked. (Results here.)
Ferritin is loooow.  This explains why I couldn't raise my dose! (Low cortisol can prevent a person from raising, too, and my cortisol is low, too.) 

Of course, I should have known from Stop the Thyroid Madness to have had my iron checked much earlier in the game.  Janie Bowthorpe knows from her own experience as well as patient experience to check the right labs from the get-go.

I'm now supplementing with good, strong doses of essential iron in Hema-Plex.  While I'm waiting for my iron to come up, I'm using T3 for my CM dose.  It will be more effective this way.  The drawback is that my thyroid labs are all low, so I need to stay on NDT to keep them from dropping lower, but since I can't tolerate the right dose, I'm still feeling hypo.  

I may not be being treated optimally right now, but I feel light years away from where I was five months ago! I am definitely on my way.

Education

I mentioned realizing that there was something deeper wrong with me - deeper than low progesterone.  In January of this year, I decided to go on natural dessicated thyroid.  I had seen an alternative MD a couple of years before who I knew prescribed NDT.  I made an appointment and started NDT the following day. 

I knew that I needed to be educated about the use of NDT.  I was fed up with being sick.

I knew that if I was going to get well, 
I had to assume control of my own education 
about my health issues.

I borrowed my mom's copy of Stop the Thyroid Madness and I read it again and again.  I scoured the STTM site and scoured it again.  I read, read, read, read, read. 

When you have brain fog, confusion and fatigue, you have to read and re-read, again and again


Intelligent, education individuals find themselves struggling to follow basic, rational thought.  It takes repetition. 

I also bought Paul Robinson's book Recovering with T3 and read his website and blog. 

A Support Network

One of the very, very most important things that have gotten me to this point is having a support network. 

My husband is extremely supportive in my endeavors to get well.  A natural information gatherer, he reads and scours the internet about things like nutrition.  He listens to me vent my frustrations, and he is very good at helping me work through information in a rational manner and problem-solve my issues.

My parents, especially my mom, have been incredibly supportive through this process, as well.  Just their support alone has such a bolstering effect on me.  My mom is one of the best listeners I know.  And she helps with our daughters while I go to appointments.  I'm so thankful we live near them.   

The beauty of God's loving Providence is that my mom has hypothyroidism and high cortisol.  Now that I'm working through all of this, I am helping her, too.  I can't tell you how much it means to me to be able to do something for the person, with my dad, who has done more for me than I will ever know.

Scheduling fun: Being able to get out more, relax and have fun with my family, especially our two little girls, has been one of the most enjoyable parts of getting better.  But there is a tendency to become obsessive about getting well (learning and applying it to myself and even helping others).  Scheduling fun and allowing for spontaneous play time is important - no VITAL to getting well.

I also joined the SSTM Facebook Discussion Groups.  I don't even really know the people on these groups, but they have become as dear friends to me as any in "real" life.  We share a unique bond in our health issues that none of my current friends do.  That alone has been, well, huge. 

These thyroid patients have also supported me by sharing their experiences and allowing me to share mine. 

Patient Experience

If you're not familiar with Janie Bowthorpe's Stop the Thyroid Madness website, blog and books, I will enlighten you to the fact that this is the precise reason why she has had such huge, rapid success: patient-based experience and patient-based information sharing is brilliant. 

Can you imagine how modern medicine would take off if patients and health care providers shared information about all medical conditions and diseases in the same way that STTM does? 

Passing it on

It gives me great joy and pleasure to pass along my experiences and knowledge about thyroid treatment and related information.  I feel very strongly about "community service" and despite the fact that this particular community of individuals is all over the world makes it no less important to me.

June 17, 2012

"Chemical Analysis Showing Difference Between NDT annd T4-only"

http://www.stopthethyroidmadness.com/2012/06/17/chemical-analysis-showing-difference-between-ndt-and-t4-only/